We went back to Vandy on Monday for a check up and Echo. We went with the expectation of scheduling our next appointment for a Cath to take the Broviac out and stop the Flolan infusion. Unfortunately, things didn't go exactly according to OUR plans. Andy's heart and pressures have not improved. They are kind of stagnant right now. Even after the increase of Flolan and an oral drug being introduced. So for right now we are in a holding pattern when it comes to any changes in medicine. It is possible that the Flolan has run it's course and this is as low as it is going to take Andy's pressures. This will mean that he will not be able to have the Broviac removed and the infusion stopped. Although we were a bit discouraged about the thought of our little guy having the "back pack" for the rest of his life we were reminded of last October when we were told that there was no hope for Andy to live. THANK YOU GOD FOR THE "BACK PACK!!!" Please pray that the Lord would continue to encourage our faith to trust Him in ALL things. This has been our first check up that we haven't received raving reports on improvement. It's funny how we can forget so quickly about all the Lord has done for us in the last year and become discouraged. Lord, forgive us. Thanks for our precious little Andy.
SO, with the possability that Andy will have this back pack for awhile we have decided "it" needs a name.............any thoughts????